The family tries to raise money to accelerate the process of investigating the disease (leukodystrophy) and to be able to bring Juanma to the United States. He asks us to do what we can to help him.
Juanma is a boy from Almería, Spain, who has just turned 4 years old. He has a very rare disease called leukodystrophy, a variety of Alexander syndromeAs the disease progresses, the child may lose sight, hearing, and remain tetraplegic and in a vegetative state until death. Normally those afflicted with this disease do not usually exceed 6 years of age.
Juanma's family found hope in Wisconsin, USA, the only place in the world where treatment for this syndrome is developed. The problem is the high cost of the treatments. The family has been told that Juanma will need a treatment in which each of the 10 minimum recommended stages costs about $ 250,000 (treatment, hospital stay, tests, etc.). The family tries to raise money to speed up the investigation process of the disease and to be able to take Juanma to the United States. Ask us to do what we can to help you. More details about the disease and how to help Juanma at ayudajuanma.es.
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